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Newborn screening for spinal muscular atrophy: Patient information sheet

We would like to invite you to consider taking part in our research study on newborn genetic screening for spinal muscular atrophy (SMA). Taking part is voluntary; it is entirely up to you to decide whether this is something you would like to do. To help you decide, we have prepared this information sheet which explains why we want to do this research study and, most importantly, what taking part would involve for you and your newborn baby.